The Emerging Role of “Death Workers” in Redefining Grief and Mourning
In a world where death often remains a taboo subject, Meghan Johnson, a Madison resident, is on a mission to transform how we approach it. Following the loss of both her parents to terminal illnesses in her 30s, Johnson found herself grappling with profound grief and isolation. Despite the support from her community, she discovered a lack of meaningful conversations about loss.
“Everyone was really kind to me and listened to me through that process,” Johnson told WPR’s “Wisconsin Today.” “But it was difficult to have those conversations around loss.”
Johnson has since channeled her personal experience into her new role as a “death worker,” a profession dedicated to guiding individuals through the practical and emotional complexities of death and mourning. She believes that American society’s distant and hushed relationship with death needs to be changed.
Set to open this summer, the Madison Death Studio and Bookshop will serve as a hub for workshops and resources aimed at reshaping our cultural narrative around death and dying.
The following interview has been edited for clarity and brevity.
Exploring the Concept of a Death Worker
Rob Ferrett: What exactly does being a death worker entail?
Meghan Johnson: The term “death doula” describes someone who supports individuals experiencing a predicted death, often in hospice settings. However, I prefer “death worker” as it encompasses broader cultural shifts and focuses on changing how society engages with grief.
Cultural Shifts in Grieving
RF: How do you aim to change the cultural conversation about death?
MJ: My experiences revealed a disconnect between personal grief and cultural attitudes toward mourning. By examining both individual and collective grief, including global issues like climate change and political unrest, we can create a more supportive environment. For example, our first workshop will teach participants how to host a funeral for roadkill, addressing ecological grief.

Institutional Support for Grieving
RF: How can institutions better support grieving individuals?
MJ: Current bereavement leave policies are insufficient. Three days off doesn’t begin to cover the practical and emotional tasks faced after a loved one’s death. We need more robust support systems for those managing these responsibilities.
Reinvigorating Rituals Around Death
RF: How can we build new rituals surrounding death?
MJ: While institutions provide necessary services, they have distanced us from historically rich death rituals. We should reintegrate practices that focus on family and community involvement in the mourning process.
Supporting the Grieving
RF: What are effective ways to assist someone who is grieving?
MJ: Offering specific help rather than vague assistance is key. Propose concrete actions like delivering groceries or babysitting. This reduces the mental burden on those grieving and provides tangible support.



