In the wake of growing concerns about funding cuts, advocates for individuals with developmental disabilities are rallying for change. This sentiment was echoed during a recent listening session attended by Nebraska governor candidates Lynne Walz and Rick Beard, where many expressed hope that the next governor will restore the support they feel has been lacking.
Since the implementation of the interRAI financial support assessment program by the Nebraska Department of Health and Human Services last July, numerous families have experienced reduced funding. Despite 230 appeals, none have been successful, leaving many caretakers feeling abandoned by the state’s support system.
Parents caring for adult children with disabilities at home are particularly affected by the new system. Cathy Martinez, one such parent, voiced her frustrations, stating, “Caring for a child like mine as an adult requires 24/7 care. And I don’t have Kennedy money and I don’t have Pillen money.”
The issue extends beyond financial support, as parents argue that the state’s aid significantly decreases once a child with disabilities turns 19, an age they believe is an arbitrary cut-off for such support. They also highlighted the shortage of facilities and healthcare providers for those with disabilities, with some considering legal action against Gov. Jim Pillen’s administration. Cori Watkins, a nurse and parent caretaker from Lincoln, stated, “Nobody is going to win unless we file a class-action lawsuit against the current administration collectively. Which, I think a lot of us are prepared to do. I know I am.”
Despite these criticisms, the Pillen campaign asserts that progress has been made in supporting the developmental disability community, citing efforts to reduce waitlists and invest federal funds into related programs. “We will continue to improve support for these Nebraskans — and I look forward to that ongoing work,” the campaign stated.
A lack of transparency regarding funding reductions has also been a major concern. In response, Nebraska lawmakers passed a bill requiring the Department of Health and Human Services to report on their assessment process, including details on funding changes, by August 1 of this year and the next. The bill can be viewed here.
During the session, candidates were pressed for concrete plans to address these issues. Lynne Walz, the Democratic candidate, emphasized the importance of listening to families and healthcare professionals to better allocate resources. Meanwhile, Rick Beard, representing the Legal Marijuana Now party, advocated for enhanced financial support for families. Both candidates acknowledged the community’s willingness to support one another and the necessity of ensuring families feel supported.
